Lensa’s Story

“The surgeon made me feel that this was not a death sentence and that my daughter could have a great life.”

People often asked Monicah and her husband about their family. But, although they wanted to, they did not have children. Monicah says “I hated that question more than anything. I wish they knew how much it hurt to explain.”

But finally, along came their first child, Lensa. “The joy of seeing her took my breath away,” recalls Monicah.

At 3 months Lensa became very irritable and restless. She hardly ate and always vomited afterwards. Her parents noted the rapid growth of her head. They went to their local hospital where the doctor looked closely at her head. He called in two more doctors and they went away to talk privately. “The next few minutes felt like an eternity,” Monicah recalls.

The doctor said, “Your daughter has hydrocephalus.” He explained that it’s a condition where excess cerebral spinal fluid accumulates in the skull causing the brain to swell, often called “water on the brain.” Lensa’s parents were crushed. The doctor recommended a CT scan. But it would cost $60 and nothing they owned could raise that amount. So they resigned themselves to watching Lensa’s condition get gradually worse.

Things didn’t get any better for Monicah. Her husband died after a short illness. She quit her prayer group and lost hope, hiding Lensa from the questioning looks of people around her. But a concerned prayer partner knew about BethanyKids and persuaded Monicah to take Lensa the more than 350km to Kijabe. BethanyKids paid for the CT scan and the BethanyKids pediatric neurosurgeon took her to the operating room. “The surgeon made me feel that this was not a death sentence and that my daughter could have a great life.”

“From now on I’ll share my experience with other families so they can get treatment for their children at BethanyKids without waiting so long.”

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